Our children waited too long for same diagnosis as Jesy Nelson’s twins
Charlie Brown Dani-Rae Brown could not move her legs at five months old, when her first symptoms of Spinal Muscular Atrophy (SMA) started to show Parents of babies born with a life-limiting, rare condition say their diagnoses came months too late, and after they had initially raised the alarm about their symptoms. Dani-Rae Brown was…


